“It's a real public service to have debates that bring top-tier participants together and add the sizzle of prize fight competition to a discussion of issues of first-order importance.”
Cloning and Human Genetic Manipulation Council for Responsible GeneticsBackground materials on genetic manipulation from the Council for Responsible Genetics. Sheldon Krimsky is chair of the board of directors.
Understanding Genetics With Sheldon Krimsky Sheldon Krimsky, The Tech MuseumKrimsky discusses the necessity of a Genetic Bill of Rights, a basic set of principles essential for creating a framework for understanding the ethical, legal, and social and environmental implications of biotechnology.
Genetic Explanations: Sense and Nonsense Sheldon Krimsky and Jeremy Gruber, Harvard University Press, 2013In this book, Krimsky and Gruber look at the role of genes within a broad developmental context.
For: Lord Robert Winston
My Bright Idea: Robert Winston Robert Winston interview with Robin McKie, Observer, February 27, 2010Winston tells us why it’s important to check out the dark side of inventions.
IVF Professor Warns Against Genetic Engineering Robert Winston interview with Ali Moore, Australian Broadcasting Corporation, December 7, 2007Winston warns against the potential dangers of genetic engineering and the risks of taking technology too far.
Ethics Are Not Written in Stone Robert Winston interview with Elissa Jobson, GlobalWinston talks to Global about a wide range of issues relating to medical ethics from the sale of organs to the use of embryonic stem cells to the value of patents and the compatibility of religion and science.
Genetic Screening of Unborn Babies 'May Be Inaccurate' Nick Collins, Telegraph, June 7, 2012New tests for genetic screening of unborn babies will not be 100 per cent accurate and may scare parents into believing their children will be born with a disability when they are healthy, Lord Robert Winston warns.
GM Catastrophe Warning Rin Simpson, Wales Online, May 31, 2007Genetic modification could be the greatest threat humanity faces, according to renowned fertility expert Robert Winston.
Against: Nita Farahany
Dr. Nita Farahany—Law, Behavioral Genetics & Neuroscience Uploaded July 17, 2010Farahany discusses the legal, philosophical and social issues arising from developments in the biosciences, particularly related to behavioral genetics and neuroscience.
Privacy and Progress in Whole Genome Sequencing Presidential Commission for the Study of Bioethical Issues, October 2012A report from the PCSBI assessing how to reconcile expected societal benefit from advances in whole genome sequencing with privacy risks that fall to the individuals who share their genomic data. Farahany was a member of the Commission.
Lee Silver Lee Silver, Big ThinkSilver discusses biotech issues on Big Think.
On Human Cloning Lee Silver interview with Sarah Holt, 18 Ways to Make a Baby, NOVAIn this interview, Silver argues why we should not only not fear human cloning but should embrace it for the many benefits it will bring.
The Dangers of Self-Improvement Tim Radford, Guardian, April 16, 1998Reviewers savaged Remaking Eden, Lee Silver's warning of where genetic engineering may be leading, but the Princeton professor is unrepentant, and a number of scientific heavyweights are beginning to think along the same lines.
Genetically Modified Humans? No Thanks Richard Hayes, Washington Post, April 15, 2008New human genetic technologies have real potential to help prevent or cure many terrible diseases, but these same technologies also have the potential for real harm.
The Case Against Perfection Michael Sandel, Atlantic, April 2004Gene therapy on somatic (that is, nonreproductive) cells, such as muscle cells and brain cells, repairs or replaces defective genes. The moral quandary arises when people use such therapy not to cure a disease but to reach beyond health, to enhance their physical or cognitive capacities, to lift themselves above the norm.
Prenatal Testing: A Double-Edged Sword Leading to Abortion Steven Ertelt, LifeNews.com, July 27, 2012While prenatal testing offers the opportunity to correct some abnormalities or to prepare to adjust to others, it is unfortunately often utilized to screen for diseases and abort unborn children who are deemed defective.
Is Ethical Human Genetic Enhancement Possible? Alex Knapp, Forbes, September 15, 2011When we move beyond dealing with just one gene, and into enhancing more complex systems, we enter a different world of ethical and technical issues.
Designer Genes Bill McKibben, Orion, May/June 2003Lured by the prospect of making better babies, we stand on the threshold of changing forever what it means to be human.
Warning: Genetically Modified Humans Zaria Gorvett, Scientific American Blogs, October 4, 2012Screening foetal genomes to eliminate genetic ‘defects’ may lead to incremental changes in the human genetic reservoir, a permanent shift in our characteristics and eventually, self-domestication.
AGAINST
Building Baby From the Genes Up Ronald Green, Washington Post, April 13, 2008Knowing more about our genes may actually increase our freedom by helping us understand the biological obstacles -- and opportunities -- we have to work with.
The Maverick: 'It’s Our Duty to Have Designer Babies' Julian Savulescu, Readers Digest UKGenetic selection to determine how our children look, think and act isn’t recklessly playing God, argues Savulescu. It’s a gift to future generations
The Case for a Parental Duty to Use Preimplantation Genetic Diagnosis for Medical Benefit Janet Malek and Judith Daar, American Journal of Bioethics, 2012This article explores the possibility that there is a parental duty to use preimplantation genetic diagnosis for the medical benefit of future children, finding support in some situations on both ethical and legal grounds.
The Case for Enhancing People Ronald Bailey, New Atlantis, April 2011We should all have the right to choose to use or not use new technologies to help us and our families flourish.
RELATED ARTICLES & LINKS
BACKGROUND
About Genetics The Tech MuseumBackground from the Tech Museum on what genes are, how they work, genetic testing, therapies and ethics.
Genetic Testing National Human Genome Research Institute, National Institutes of Health, October 19, 2011 (last reviewed)An overview, questions raised, legislation, policy recommendations and reports on genetic testing.
Human Germline Genetic Modification: Issues and Options for Policymakers Genetics and Public Policy Center, May 2005This report analyzes the scientific, legal, regulatory, ethical, moral, and societal issues raised by genetic modification of the human germline, provides data about the American public’s views about HGGM, and explores possible policy approaches in this area.
International Law Search Genetics & Public Policy Center, Updated January 2004International laws on cloning, human genetic modification, and reproductive genetic testing.
Brave New World War Jamie Metzl, Democracy, Spring 2008Genetic engineering will soon turn science fiction to fact. Why we need a new global treaty to control it.
DNA Blueprint for Fetus Built Using Tests of Parents Andrew Pollack, New York Times, June 6, 2012For the first time, researchers have determined virtually the entire genome of a fetus using only a blood sample from the pregnant woman and a saliva specimen from the father.
Medical Frontiers: Debating Mitochondria Replacement Human Fertilisation & Embryology AuthorityUK researchers are working on new medical techniques that could allow women to avoid passing on genetically inherited mitochondrial diseases, to their children. The HFEA launched this public consultation to gather views on the social and ethical impact of making these techniques available to patients.
'Three-Parent Babies' Cure for Illness Raises Ethical Fear Ian Sample, Guardian, June 5, 2012Mitochondrial disease, passed from mother to child, is incurable. Scientists see a way to eliminate it using donor DNA but this has set off a debate about 'three-parent babies.'
EUGENICS
Human Testing, the Eugenics Movement, and IRBs Karen Norrgard, Nature Education, 2008The eugenics movement of the early 1900s ultimately went horribly wrong despite its noble aims. What can we learn from this movement’s outcomes in order to avoid the repetition of these mistakes?.
BEHAVIORAL GENETICS
Behavioral Genetics Human Genome Project InformationHuman behavioral genetics, a relatively new field, seeks to understand both the genetic and environmental contributions to individual variations in human behavior.
TRANSHUMANISM
Debating Extreme Human Enhancement Kyle Nunkittrick, Nicholas Agar and Brad Allenby, Slate, September 13-16, 2011Contributors discuss the convergence of human beings and technology.